Gracias Te Damos Señor

Tis the season to be thankful. I take too many things for granted, in these strange and difficult days. Good health and strength is something I’m so grateful for, especially as I’m climbing that mountain. Wait! Or am I…. descending the mountain? A healthy mind to process life does not go unnoticed in my book anymore. I’m recognizing again that we have things for seasons and sometimes we get special one time experiences that a grateful heart will tuck away into the memory, sometimes dormant, until something triggers it. Today was a trigger day. 

Usually when things happen they pile up needing attention ahorita mismo! This entire week has been chaotic, as all hands are on deck to plan a baby shower for our 8th, asi es 8th grandchild. As you can imagine everything is a mess, and with the weather being dry, everything is dusty and dirty. De repente, I get notice that I’ll have guests, que exagerada! It only felt like all of a sudden a grenade was launched and I had to get busy to save my life! The room I had to prepare was my apas room. I call it Tatas room. His room has had use, but not often in these past 11 months. I use it and it is not weird or painful to go in it, no mas que ahora I had to do some deep cleaning, and dusting reaching areas that require moving furniture around, ya saben. I had wiped down photo frames with images of dad and family. These faces look right at me whenever I go in, they’re part of the room. Suddenly I was transported back to those initial transition days of taking care of my apa. It was such a confusing and difficult time for him. He said he could do life alone, and he truly believed he still could. He stood his ground, there was nothing wrong with him he argued, he wasn’t stupid and he certainly wasn’t a baby. Dementia was already present but of course he didn’t know it.

We brought my dad’s pictures from his home into his new room.

The straw that broke the camel’s back, was yet another fall in his daycare facility, a blow to the head that sent him to the hospital. My sister and I scrambled. One of his caregivers was with him in the ER waiting for test results and for me to arrive. I already had a room ready for him in my home.

I’m going to attempt to describe what it is to battle Dementia, or mejor dicho, what me and my sister experienced with our apa. Dementia refers to memory loss and the loss of other reasoning abilities. It  is a progressive disease, which when severe enough will alter a person’s ability to function daily. Our apa dealt with dementia of the Alzhemiers kind.  It gets into the brain and squashes out memory and spreads until it reaches across the mind. Many sundown experiences put us into a twilight zone episode where we spun around in circles getting nowhere. “Redirect him,” the nurse would tell us, and when we weren’t bound up in frustration and angry emotions, we could manage that. Some of the more successful evening battles against dementia usually involved dad telling a childhood story from his long term memory archives. I tried to always be prepared with my writing  tools. 

Sometimes the skirmishes at  sundown left me confused! Today, deep cleaning this room, triggered a night time conversation I’d had with my apa. That first night in his new surroundings he was uncomfortable and awkward. We had settled him into bed and he wondered where I was going to sleep since he had taken my bed.

Me: No apa, es su cama

Apa: No, mi cama esta en mi casa

Me: Esta es su casa

He chuckled, like I was being polite, you know how we latinos open our home up, “mi casa es su casa.”  Que casualidad that he remembered that he wasn’t home. Sometimes dementia made me suspicious that perhaps he wasn’t confused, could he be faking it? Apa was worried about where I would sleep. I assured him that I was going to my room but if he needed anything I would hear him call and come check on him. I had a good monitor that picked up even the sound of his breathing.

Apa: Y Ben donde esta?

Me: Apa, Ben esta en nuestro cuarto.

He chuckled again, looking at me sideways. 

Apa: Ese no es Ben! Hijole! Dads long term memory only remembered the young Ben not the… hmmm… mature one 😀

Of course I was offended, dementia or no dementia mi apa was insinuating that another man would be in my bed! Imaginate! I stood up for myself of course and explained and explained again, four or five times, that Ben was the only man for me. I eventually resorted to the redirection trick and it worked. We survived our first night, apenas!  Another thing to be grateful for is my flaco who was patient and kind even though his suegro many times thought he was a stranger in the house.

Dementia torments it’s victims and their caregivers. Y por supuesto, my outlet has been my writing. It cages you up sometimes. At times I felt sorry for my apa and other times I was right in the cage with him. We experimented with him living part time in my home and part time in his, but we realized after a few months that it had only confused him more.

dementia is a humbling experience for both the patient and the caregiver.

I wrote this after a long evening of confusion for him and fatigue for me.

Caged

When are you taking me home?

Dad, you are home.

This is my home?

I must be losing my mind.

Where’s Lupe?

Your wife died last year.

What? I saw her last night.

I must be losing my mind.

Is my mother alive?

She died a long time ago.

Why didn’t anyone tell me?

I must be losing my mind.

Where’s my wallet?

In your pocket.

Where’s my keys?

I must be losing my mind.

Is my car outside?

It’s right outside.

I can’t see it.

I must be losing my mind.

Tell me about your family?

Your husband repairs tires?

That’s my sisters husband,

My husband paints houses.

I must be losing my mind.

When are you taking me home?

You are home Dad.

Don’t you recognize the pictures?

I must be losing my mind.

Dad voiced those words many times when he couldn’t remember and then he would get confused and plenty of times angry because we didn’t understand him. It was a vicious cycle.

Today, I was sad for a moment about that trigger that led me down to that memory, but then I was glad for the opportunity to have lived it.

I am thankful for those years with my dad and for all the years I’ve had with family and friends. I’m grateful for every year that I have a healthy mind, to cherish, understand and appreciate my loved ones.

I am a Writer

I probably spent way too much time just trying to come up with a catchy title for this post. Hijole!  This post feels like a desperate plea to get approval or accreditation. Who is gonna give me that final stamp of approval? If this feels like an explanation as to why I’m even here, it is. I need to remember, quizás mi propia voz, my own loud voice needs to tell me to get to writing!.

Voices In My Head

The many opinionated voices inside my head make me lose my way. Esperate! No estoy loca, or maybe I am just a little crazy. You know those sneaky mockers question why am I here, in this blog? Doubting Thomas (not my Thomas 😆) truly questions: Que fregados estas haciendo?! Deveras, sometimes it’s the loudest voice screaming: What the heck are you doing? Really? You think you belong here in Writers land?

Some days my voice is really soft, if you know me, that’s pretty incredible to believe, ya se. It whispers to those loud intimidating voices. “I want to write” Que?! They laugh at me and some days those snickers push me into a corner and I won’t write. Pero, gracias a Dios I don’t stay there long, because I want to write. 

Me gusta escribir. Sometimes it’s a lot of work, pero I like it anyway. When I was in university so long ago my english T.A said “you’re a good writer” Deveras? Was a good writer supposed to put some of her dirty laundry on paper? Especially on papers that were graded? Still, I allowed myself some flattery in that comment, it gave me a warm fuzzy feeling inside. 

Then, years later, a very important person in my life asked me to write a letter of recommendation where I described my relationship with the person requesting the letter. When I was done and the letter was submitted, that person said “You’re a good writer” Pues ya sabras, it was like yeast in my brain. The idea grew, was I a good writer? If that person thought so, then it must be, verdad? Now it was more that a good feeling inside and it was more than therapy.

My Writing Plan

Photo by Jess Bailey Designs on Pexels.com

In a different post, I describe my writing as a therapeutic relief, and it is. Mapping situations out with some embellishment, helps me work things out. But all of a sudden, when I got inspired to  write a short story or a skit, I began to do it as if someone else would one day read it. Yes, I neatly, or not so neatly filed  it in my different folders, almost ready to be read by other eyes. I totally enjoy just getting the scenes out of my head and onto paper, quisas someone would enjoy reading them? That yeast was really growing, imaginate! I was bold enough to create my first blog. Asi es, choosethenarrowpath.blogspot.com, was born. I did this toda solita. All alone in the blogging world I began to learn a lot about the hard work of writing, but the desire to share wasn’t quenched despite my lack of skills in the tech world. The lack of readers did slow me down on that platform, but my folders kept growing. 

As the idea of sharing my writing grew, another one did too. The fact that I had never finished my degree bothered me now. Going back to college and finishing my degree, or at least improving my writing skills seemed doable now. I had been way too busy and focused on raising my children and teaching them to walk on the narrow path while juggling life. Besides I had absolutely no time, energy or money for my schooling. Luego, Thomas, my last child, entered high school and I had time again. Did abuelas go to college? 

Back to School

I was glad for the opportunity and  I shyly shared with Ben, my family and dear friends my dream to be a published writer. Going back to school would boost my confidence and sharpen my pencil. It was the weirdest, oddest feeling. Walking back into the college culture, I felt like I was walking back into the 80s, back to UCSD.  A 50 something year old grandmother feeling those butterflies, those awkward moments of not knowing anyone. Inside I was 18 again, but thankfully, God kept me grounded as I stayed focused on the academics and I loved the stimulation that came with learning. Pero, it was short lived. Ya se, the roller coaster of life. My apa needed me. As a full-time caregiver I didn’t have time again, and I chided myself “tonta.” That was silly, of course I was too old and too busy for schooling again. I was disappointed, but my writing didn’t stop.

 My collection of stories grew, especially since my apa was unloading all his memories. I worked on my historical fiction short stories and I hung on to my blog. As dad grew weaker my writing experiences grew further apart, for a long while my journal was the only book I wrote in.

As my apas last chapter in life came to a close, I grew frantic with writing. Como pues? How could he just leave? Was tercera edad, 96 years of living reason enough to close a chapter? I hadn’t gotten my collection of his stories in rough draft order. How would I get the stories out if he left? 

In the midst of a busy emotionally packed season of caregiving, the idea for a different blog came up. My daughter and I brainstormed about a title, and presentation. It would be here that I would bring my experiences, my fathers y todo lo demas, all things pertaining to Rosalba. I was finding my voice. What was my voice anyway, besides loud that is? Daniella, is a visionary, and she said, “Mom you just keep writing, don’t worry about things.” For me it’s a good plan 😉.

Man! It felt good to write like I talk. In my other blog, I write like I think. I hope that makes sense. I have a million questions on the most important person of my life; Jesus, and there I ponder on “the deeper” stuff. Daniella describes it as reflective or thoughtful. “My diary in the corner of the internet”. My besty often wonders “what must it be like in your brain” She says it’s constantly tracking! Anyway, all that to say, I found my voice and it was comfortable.

With all the emotion that came in those last days of dad’s passing, also came a need to write, a renewed desire to write, a desperate clinging. I wrote and Daniella handled the rest. We’re a good team, she’s alot like her daddy, muy paciente. ☺

In conclusion,

Today, with things a bit more settled, I’m back in school and on the write path. This is the beginning, but just getting on this path was a journey in itself. Hijole! 

I imagine that everyone who has a dream or passion jumps on the  hope train and has to travel sometime before they arrive at their destination.